My tank has been empty lately. I’ve had little energy or enthusiasm for writing, cleaning, dog walking, or even getting out to a movie. I’m not sure if this is post-op fatigue that is normal for a month after neuroablation, or if it’s related to the stomach bug I had (that may still be lingering), or if I’m just worn out from all this cancer bullshit.
Whatever it is, I’d like to get myself out of this funk. So I brought the Macbook along to oncology today to force myself to write and I’m currently sitting in the chemo chair, getting my Herceptin and Perjeta infusions. My oncologist, Dr. K., is on vacation so we met with the oncology nurse today. She’s concerned about my white blood cell counts being a little low, so I’ll be back next week for more bloodwork to check on things and to get my Xgeva shot (a medication I receive every few months that keeps my bones strong).
I also had a CT scan of chest, abdomen, and pelvis last week, and a bone scan. All showed no progression of existing metastases and no new involvement, which is great. Three cheers for Herceptin and Perjeta getting me to another four month scan milestone with minimal side effects (mostly fatigue…but that’s what naps are for). From the neck down I seem to be doing really well.
But how am I doing from the neck up, you ask? Well, I was supposed to have another post-op brain MRI at Yale this Thursday to check my progress, but my health insurer (Cigna) has denied coverage. Cigna says I have to wait three months until they will cover another MRI of my brain, even though my neurosurgeon Dr. Chiang appealed the decision with her clinical rationale. So I did what people do these days to get their customer service needs met – I bitched about it on Twitter. Cigna’s social media manager emailed me within 5 minutes of the tweet and asked me to send them further details so they could “look into it.” We’ll see what becomes of it. It would be nice if the insurance companies would honor my own doctor’s recommendation over some random benefits management M.D. who has only a surface level understanding of my individual case or needs.
In completely unrelated and much happier news, Jasper came home from school yesterday and told us he’s been asked to go to junior prom with a classmate. Unfortunately, prom is this Friday and he doesn’t own a suit or sport jacket, much less a tux. But that’s a dilemma that’s fun to fix (although you should ask me how much fun I’m having when it’s Thursday night and we’re still running all over Connecticut looking for formalwear).