The next two weeks should give us more focus into my new treatment plan. My latest brain MRI results are in. The biggest lesion right now, which was 13mm x 10mm in April, has grown to 21mm x 26mm. It’s in the left frontal lobe. The rest of my brain mets are generally stable (some slightly larger, some slightly smaller). We are talking millimeters, but with steady growth, millimeters can make a big difference in tumor-land.
I’ve had no more seizures since my last post, and my trip to Illinois and Iowa over Labor Day weekend for my Dad’s memorial service went very well. I’ll be seeing my medical oncologist and my neuro-oncologist soon, and will hopefully start the new infusion of Avastin the week of September 17th.
As for potential side effects, fellow patients have told me they’ve had everything from nosebleeds to laryngitis to nausea. And some people have reported no bad effects from Avastin at all. So I really don’t know what to expect. It’s like watching your typical consumer targeted prescription drug advertisement, with language like “don’t take this medication if you are allergic to it, as it could be fatal. If you experience suicidal thoughts, call your doctor. The most common side effect is nausea.” Usually happy puppies playing, gardens, beach frolicking, and other distracting scenes are playing in the background to block out the death sentence messaging and the more mild nausea disclaimer.
It was such a joy to see so many of my Ford relatives this past weekend and to spend time with my sister. At the end of the month, my niece Jayme and her dad Jay are coming to visit us for a weekend. I’m trying to focus on the good things ahead, especially the good people, instead of getting lost in worrying about expiration dates.
Please keep your fingers crossed on the Avastin front (and if you’ve taken it, please let me know what your experiences have been in comments).