This is the second of five daily diary entries about living with MBC.
Tuesday, October 29, 2019
6:30 am – Lidocaine patch removal, courtesy of my dear hubby who has already been up a couple of hours working in his home office. I had trouble falling asleep last night, likely due to the steroids starting to kick in. So sleepy.
7:30 am – Toast and pills time. It’s a party!
8:00 am – Angie, one of my visiting nurses, calls to see if she can drop by early due to a cancellation on her schedule. I’m still in bed so I ask her to keep it to our prescheduled time.
9:00 am – Brush my teeth and hair and clear some space in the kitchen for my guest. This includes banishing poor Sunny to the bedroom. Not just because she’s a spazz, but because my visiting nurse organization has a rule about keeping all pets “restrained” during visits. I kind of skipped that note with the cats. Ollie (blind cat) can’t see them and Nellie (elderly cat) just sleeps through their visits.
10:15 am – Angie arrives and we catch up on my latest doc visits and how I’m feeling. She’s also an occupational therapist so she’s given me exercises to try and help improve my arm pain. Insurance deems that this is her last visit to me unless we resubmit new orders from my doc. I think I’m okay for now and would rather not go down the rabbit hole with health insurance.
11:00 am – Took a look at yesterday’s blood test results via my patient portal. Nothing seriously out of whack there.
11:15 am – Internal struggle over whether to get up and clean the house a bit or go back to sleep for a while. I’m not hungry, but I need to eat something for lunch so I choose that. Tim is nice enough to make me some soup. Then my thoughts and body turn to sleep again. Nap time!
3:00 pm – Whoa…long nap!
4:00 pm – Time to get this post completed for today. It takes me a while to put my thoughts together on the page these days. I live a fairly medically-regulated life these days so I think I can make solid predictions for the last few hours of the day (which will be edited tomorrow if something else earth shattering happens).
7:00 pm – Tim puts Lidocaine pain patches on my back and shoulders.
7:10 pm – Pill time again.
7:30 pm – Goodnight, folks!
Also, I think everyone deserves a Sunny sleeping video for sticking around. Turn up your volume!