Hello from the other side of brain surgery. I seem to have made it through successfully. As usual, my surgeon was fantastic, the nursing staff was great, and I received excellent care. I could have done without all the noise in Yale’s Neuroscience ICU, but the constant beeping was the least of my worries. As … Continue reading The Brain Drain: Post-Op Edition
This Monday, I had my neurosurgery consult at Yale with Dr. Chiang. She has recommended a craniotomy to the right frontal lobe of my brain, where the largest “spot” with the most swelling is located. It’s near the surface so she should be able to just scoop it out – probably not the technical term … Continue reading Back on the Table
It’s test result time. My latest CT scan, from the neck down, came back stable. The biggest concern that I had going into the scan was my hip, but the pain has diminished and the scan found nothing except arthritic changes (welcome to my 50s). However, my damn brain is not cooperating. The MRI revealed … Continue reading Tumors, Necrosis, and Brains…Oh My
Before the month is over, I wanted to provide an update on life in Cancerland. I’ve been struggling with the side effects of whole brain radiation (WBR) for over three months now. My wonderful medical oncologist, Dr. K., has been a godsend with his diligence in finding additional options for my non-stop nausea. After Zofran, … Continue reading March Madness
Electronic health records (EHR) have been around since the late sixties, and government regulations now require hospitals and doctor’s offices to implement them or receive a financial penalty. So why does each trip to a healthcare provider still seem like we are reinventing the wheel with the medical file? To illustrate, let me walk you … Continue reading Epic Failure
The latest MRI says my brain is holding steady. Compared with the MRI that was taken before whole brain radiation (WBR), the new imaging shows no new tumors, and shrinking of some existing tumors. The swelling that was around my brain is also diminished. So good news on that front! I'll have another brain MRI … Continue reading Brain MRI Results Are In
Latest WBR side effects, CT results, and other health updates. Plus, Paula's realistic resolutions for 2018.
Last Thursday marked my final session of whole brain radiation (WBR). Altogether, I had ten treatments (skipping weekends and holidays). After the first “set up” appointment, where they created a custom molded plastic mask to hold my head in the exact same position each time, the actual radiation process was a breeze. Before each session … Continue reading Bang a Gong
OK, they aren’t really going to nuke my head, but I am getting ten sessions of whole brain radiation starting this afternoon. I’ll back up a bit first, however. Last Sunday I woke up with a headache that nothing would relieve. I tried Advil, then Tylenol, then both together. Even my medical marijuana wouldn’t touch … Continue reading Nuking my Noggin
How do we live in the here and now and not in a constant state of waiting and worrying about MBC? It’s something I’m still working on.