After a few recent and unexpected deaths in several of my communities, I’ve been reflecting a lot about “the end” lately. I’ve realized that in certain ways, I’m lucky to know that I’m terminally ill. With a medical diagnosis, even of metastatic cancer, you get a suggested chunk of time you’ll still be on this … Continue reading Be Prepared: One for the Metsters
You know what really grinds my gears? When I call the waiter back to the table to take our order when she’s just taken it ten minutes earlier. Or when I tell my husband the same story three times because I have no recollection whether I’ve shared it already or not. And when I start … Continue reading What Was I Doing Again?
It’s October, month of perpetual pink. For those of us with metastatic, stage IV breast cancer, it’s also a daily reminder that barring some dramatic new medical discovery, I won’t be cured in my lifetime. “Terminal” is not a word you hear much during Breast Cancer Awareness Month.As a patient, I try to be optimistic, … Continue reading Pinky and My Brain
The next two weeks should give us more focus into my new treatment plan. My latest brain MRI results are in. The biggest lesion right now, which was 13mm x 10mm in April, has grown to 21mm x 26mm. It’s in the left frontal lobe. The rest of my brain mets are generally stable (some … Continue reading Fortnight
I lost eight hours on Tuesday. I went to our bedroom to rest and after that I only remember bits and pieces until regaining my power of speech and comprehension courtesy of IV steroids. Which is a shame since I just tapered off of the darn things, post-London. Unlike previous seizures, this one snuck up … Continue reading Never a Dull Moment
Much to my surprise and delight, we made it to London and back without a single medical incident. Oh wait…that is if you don’t count a skinned knee on the Dickens walking tour (after klutzy me fell up a step). We caught London during its biggest heatwave in years, and our hotel room AC worked … Continue reading London Tales
Cheerio, folks. We are headed to the airport shortly to embark on the big adventure to London. And not to worry; the housesitters and petsitters are in place to keep any social media stalkers with bad intentions away (I know I’m performing an internet no-no in announcing our travels; but your prayers, happy thoughts, and … Continue reading Cheerio!
When I was first diagnosed with stage IV metastatic breast cancer (MBC) in 2015, my husband and I had many, many questions for my new medical oncologist, Dr. K. At the top of the list was “how long can I expect to live with this disease?” I found that was an easier question to write … Continue reading Expiration Dates
It’s been a while, once again, but after staring at my computer screen for about two weeks, I think I can eke out a blog post. The gamma knife surgery went as planned. I won’t go through the whole spiel as to how it’s done again, but you can read about that here. As it … Continue reading Hurry up and Wait
Hello from the other side of brain surgery. I seem to have made it through successfully. As usual, my surgeon was fantastic, the nursing staff was great, and I received excellent care. I could have done without all the noise in Yale’s Neuroscience ICU, but the constant beeping was the least of my worries. As … Continue reading The Brain Drain: Post-Op Edition