Last Thursday marked my final session of whole brain radiation (WBR). Altogether, I had ten treatments (skipping weekends and holidays). After the first “set up” appointment, where they created a custom molded plastic mask to hold my head in the exact same position each time, the actual radiation process was a breeze. Before each session … Continue reading Bang a Gong
OK, they aren’t really going to nuke my head, but I am getting ten sessions of whole brain radiation starting this afternoon. I’ll back up a bit first, however. Last Sunday I woke up with a headache that nothing would relieve. I tried Advil, then Tylenol, then both together. Even my medical marijuana wouldn’t touch … Continue reading Nuking my Noggin
Just a brief post to let everyone know that my brain MRI showed NO new metastases and overall reduced swelling around the existing metastases. That’s good news on two counts. I see Dr. Chiang, neurosurgeon extraordinaire, on October 2nd and will find out more, but that’s the quick update from her nurse. I’m hoping they’ll … Continue reading Stable
My latest bucket list adventures and a new/old course of chemo. And my brain calms down for the time being.
It’s been a hell of a couple of weeks, both physically and emotionally. I started my new oral chemo, Xeloda and Tykerb, on June 5 and it is officially kicking my ass. The nausea and vomiting that has been dogging me since early this year has amped up as an expected side effect of these … Continue reading Hot Mess, The Heartbreakers, and Hamilton Bound
I'll be changing treatments soon. I'm also sick of insurance companies.
It’s a beautiful 78 degree day here in Old Saybrook, which is doing more to improve my mood than just about anything could. Plus I’ve made it through the first half of May without a trip to the hospital (woot!).
My tank has been empty lately. I’ve had little energy or enthusiasm for writing, cleaning, dog walking, or even getting out to a movie. I’m not sure if this is post-op fatigue that is normal for a month after neuroablation, or if it’s related to the stomach bug I had (that may still be lingering), … Continue reading Out of Gas…And Patience
One of my biggest fears has always been the possibility of losing the power to express myself with words. As a writer and editor (on long term hiatus at the moment), I’ve relied on my communication skills to support myself for two-thirds of my life. When I was diagnosed with brain metastases in 2016, that fear hit home hard.
Today is brain surgery day and I'm up at 4am wondering what I've forgotten to do in preparation of being out of commission for a few days. I'll admit I have some minor nerves and some major thirst and hunger this morning (dang pre-op fasting). I suppose it's inappropriate to be looking forward to a long, anesthesia … Continue reading It’s Showtime, Folks