Electronic health records (EHR) have been around since the late sixties, and government regulations now require hospitals and doctor’s offices to implement them or receive a financial penalty. So why does each trip to a healthcare provider still seem like we are reinventing the wheel with the medical file? To illustrate, let me walk you … Continue reading Epic Failure
The latest MRI says my brain is holding steady. Compared with the MRI that was taken before whole brain radiation (WBR), the new imaging shows no new tumors, and shrinking of some existing tumors. The swelling that was around my brain is also diminished. So good news on that front! I'll have another brain MRI … Continue reading Brain MRI Results Are In
Latest WBR side effects, CT results, and other health updates. Plus, Paula's realistic resolutions for 2018.
Last Thursday marked my final session of whole brain radiation (WBR). Altogether, I had ten treatments (skipping weekends and holidays). After the first “set up” appointment, where they created a custom molded plastic mask to hold my head in the exact same position each time, the actual radiation process was a breeze. Before each session … Continue reading Bang a Gong
OK, they aren’t really going to nuke my head, but I am getting ten sessions of whole brain radiation starting this afternoon. I’ll back up a bit first, however. Last Sunday I woke up with a headache that nothing would relieve. I tried Advil, then Tylenol, then both together. Even my medical marijuana wouldn’t touch … Continue reading Nuking my Noggin
Just a brief post to let everyone know that my brain MRI showed NO new metastases and overall reduced swelling around the existing metastases. That’s good news on two counts. I see Dr. Chiang, neurosurgeon extraordinaire, on October 2nd and will find out more, but that’s the quick update from her nurse. I’m hoping they’ll … Continue reading Stable
My latest bucket list adventures and a new/old course of chemo. And my brain calms down for the time being.
It’s been a hell of a couple of weeks, both physically and emotionally. I started my new oral chemo, Xeloda and Tykerb, on June 5 and it is officially kicking my ass. The nausea and vomiting that has been dogging me since early this year has amped up as an expected side effect of these … Continue reading Hot Mess, The Heartbreakers, and Hamilton Bound
I'll be changing treatments soon. I'm also sick of insurance companies.
It’s a beautiful 78 degree day here in Old Saybrook, which is doing more to improve my mood than just about anything could. Plus I’ve made it through the first half of May without a trip to the hospital (woot!).