This is the second of five daily diary entries about living with MBC. Tuesday, October 29, 2019 6:30 am – Lidocaine patch removal, courtesy of my dear hubby who has already been up a couple of hours working in his home office. I had trouble falling asleep last night, likely due to the steroids starting … Continue reading Dear Diary: Tuesday
Before the month is over, I wanted to provide an update on life in Cancerland. I’ve been struggling with the side effects of whole brain radiation (WBR) for over three months now. My wonderful medical oncologist, Dr. K., has been a godsend with his diligence in finding additional options for my non-stop nausea. After Zofran, … Continue reading March Madness
Electronic health records (EHR) have been around since the late sixties, and government regulations now require hospitals and doctor’s offices to implement them or receive a financial penalty. So why does each trip to a healthcare provider still seem like we are reinventing the wheel with the medical file? To illustrate, let me walk you … Continue reading Epic Failure
It’s been a hell of a couple of weeks, both physically and emotionally. I started my new oral chemo, Xeloda and Tykerb, on June 5 and it is officially kicking my ass. The nausea and vomiting that has been dogging me since early this year has amped up as an expected side effect of these … Continue reading Hot Mess, The Heartbreakers, and Hamilton Bound
I'll be changing treatments soon. I'm also sick of insurance companies.
It’s a beautiful 78 degree day here in Old Saybrook, which is doing more to improve my mood than just about anything could. Plus I’ve made it through the first half of May without a trip to the hospital (woot!).
My tank has been empty lately. I’ve had little energy or enthusiasm for writing, cleaning, dog walking, or even getting out to a movie. I’m not sure if this is post-op fatigue that is normal for a month after neuroablation, or if it’s related to the stomach bug I had (that may still be lingering), … Continue reading Out of Gas…And Patience