A list of things YOU SHOULD NOT be hearing at the doctor’s office or hospital, to hopefully improve your 2020 if you are living with MBC or love someone who has it.
I lost eight hours on Tuesday. I went to our bedroom to rest and after that I only remember bits and pieces until regaining my power of speech and comprehension courtesy of IV steroids. Which is a shame since I just tapered off of the darn things, post-London. Unlike previous seizures, this one snuck up … Continue reading Never a Dull Moment
Hello from the other side of brain surgery. I seem to have made it through successfully. As usual, my surgeon was fantastic, the nursing staff was great, and I received excellent care. I could have done without all the noise in Yale’s Neuroscience ICU, but the constant beeping was the least of my worries. As … Continue reading The Brain Drain: Post-Op Edition
This Monday, I had my neurosurgery consult at Yale with Dr. Chiang. She has recommended a craniotomy to the right frontal lobe of my brain, where the largest “spot” with the most swelling is located. It’s near the surface so she should be able to just scoop it out – probably not the technical term … Continue reading Back on the Table
My bucket list 2017 Chicago trip is complete! While we had to make some last minute adjustments to accommodate an afternoon in the ER, it was a wonderful vacation filled with friends, family, food, music, and love. Your Obedient Servant, A. Ham We flew in Thursday morning and were fortunate enough to stay at the … Continue reading Chi-Town Adventures
Three hospital admissions in three months. Is that the Stage IV hat trick?
One of my biggest fears has always been the possibility of losing the power to express myself with words. As a writer and editor (on long term hiatus at the moment), I’ve relied on my communication skills to support myself for two-thirds of my life. When I was diagnosed with brain metastases in 2016, that fear hit home hard.