Cheerio, folks. We are headed to the airport shortly to embark on the big adventure to London. And not to worry; the housesitters and petsitters are in place to keep any social media stalkers with bad intentions away (I know I’m performing an internet no-no in announcing our travels; but your prayers, happy thoughts, and … Continue reading Cheerio!
When I was first diagnosed with stage IV metastatic breast cancer (MBC) in 2015, my husband and I had many, many questions for my new medical oncologist, Dr. K. At the top of the list was “how long can I expect to live with this disease?” I found that was an easier question to write … Continue reading Expiration Dates
It’s been a while, once again, but after staring at my computer screen for about two weeks, I think I can eke out a blog post. The gamma knife surgery went as planned. I won’t go through the whole spiel as to how it’s done again, but you can read about that here. As it … Continue reading Hurry up and Wait
Hello from the other side of brain surgery. I seem to have made it through successfully. As usual, my surgeon was fantastic, the nursing staff was great, and I received excellent care. I could have done without all the noise in Yale’s Neuroscience ICU, but the constant beeping was the least of my worries. As … Continue reading The Brain Drain: Post-Op Edition
It’s test result time. My latest CT scan, from the neck down, came back stable. The biggest concern that I had going into the scan was my hip, but the pain has diminished and the scan found nothing except arthritic changes (welcome to my 50s). However, my damn brain is not cooperating. The MRI revealed … Continue reading Tumors, Necrosis, and Brains…Oh My
Before the month is over, I wanted to provide an update on life in Cancerland. I’ve been struggling with the side effects of whole brain radiation (WBR) for over three months now. My wonderful medical oncologist, Dr. K., has been a godsend with his diligence in finding additional options for my non-stop nausea. After Zofran, … Continue reading March Madness
Electronic health records (EHR) have been around since the late sixties, and government regulations now require hospitals and doctor’s offices to implement them or receive a financial penalty. So why does each trip to a healthcare provider still seem like we are reinventing the wheel with the medical file? To illustrate, let me walk you … Continue reading Epic Failure
Latest WBR side effects, CT results, and other health updates. Plus, Paula's realistic resolutions for 2018.
OK, they aren’t really going to nuke my head, but I am getting ten sessions of whole brain radiation starting this afternoon. I’ll back up a bit first, however. Last Sunday I woke up with a headache that nothing would relieve. I tried Advil, then Tylenol, then both together. Even my medical marijuana wouldn’t touch … Continue reading Nuking my Noggin
How do we live in the here and now and not in a constant state of waiting and worrying about MBC? It’s something I’m still working on.