It’s been a hell of a couple of weeks, both physically and emotionally. I started my new oral chemo, Xeloda and Tykerb, on June 5 and it is officially kicking my ass. The nausea and vomiting that has been dogging me since early this year has amped up as an expected side effect of these … Continue reading Hot Mess, The Heartbreakers, and Hamilton Bound
I'll be changing treatments soon. I'm also sick of insurance companies.
It’s a beautiful 78 degree day here in Old Saybrook, which is doing more to improve my mood than just about anything could. Plus I’ve made it through the first half of May without a trip to the hospital (woot!).
My tank has been empty lately. I’ve had little energy or enthusiasm for writing, cleaning, dog walking, or even getting out to a movie. I’m not sure if this is post-op fatigue that is normal for a month after neuroablation, or if it’s related to the stomach bug I had (that may still be lingering), … Continue reading Out of Gas…And Patience
Three hospital admissions in three months. Is that the Stage IV hat trick?
One of my biggest fears has always been the possibility of losing the power to express myself with words. As a writer and editor (on long term hiatus at the moment), I’ve relied on my communication skills to support myself for two-thirds of my life. When I was diagnosed with brain metastases in 2016, that fear hit home hard.
Today is brain surgery day and I'm up at 4am wondering what I've forgotten to do in preparation of being out of commission for a few days. I'll admit I have some minor nerves and some major thirst and hunger this morning (dang pre-op fasting). I suppose it's inappropriate to be looking forward to a long, anesthesia … Continue reading It’s Showtime, Folks
Hi friends. We have a surgical date for my brain biopsy and ablation – Wednesday March 22nd. We met with Dr. Chiang again yesterday to walk through the details of the procedure. I’ll arrive at the unpleasant hour of 6:30am to get prepped for surgery. After I’m anesthetized, they will drill a small hole (about … Continue reading Brain Salad Surgery
We had our follow up with Dr. Chiang, the neurosurgeon, today to discuss next steps for my treatment given my recent seizures and the apparent growth of one of the previously treated metastatic spots in my brain. Actually, whether or not the spot in question has an active tumor in it remains to be seen. … Continue reading Free Tickets to the Laser Light Show
Let me preface this post by saying I’m on some new medications that have me in space cadet mode, but I will try and be as coherent as possible. On Monday afternoon I heard from my stepsister Debbie that my Dad had passed away in his sleep. He had atrial fibrillation, and his heart stopped … Continue reading A Difficult Week