A list of things YOU SHOULD NOT be hearing at the doctor’s office or hospital, to hopefully improve your 2020 if you are living with MBC or love someone who has it.
The last in a series of daily diary entries about living with MBC. Friday, November 1, 2019 4:30 am – Wake up to the sound of wind and rain whipping around the house. Realize that I must be dehydrated because I actually stayed in bed all night. Go to the bathroom as a precautionary measure and … Continue reading Dear Diary: Friday
Part of a series of daily diary entries about living with MBC. Thursday, October 31, 2019 1:30 am – You know what I’m up for. At least I know I’m hydrated. 6:30 am –Lidocaine patches come off. 7:00 am – Happy Halloween everyone! Time for toast and meds. 8:00 am – My visiting nurse, Laura, calls … Continue reading Dear Diary: Thursday
Part of a series of daily diary entries about living with MBC. Wednesday, October 30, 2019 4:30 am – Yes, I’m up to pee. Again. I manage to get back to sleep afterwards. 6:30 am – I’m up for Lidocaine patch removal. 7:00 am – Time for toast and my mountain of meds. 8:00 am – … Continue reading Dear Diary: Wednesday
We took it easy this July 4th weekend with a quiet night at home. Well, not quiet. We live near the beach, and fireworks pretty much last from Memorial Day through Labor Day, with a surge during the Independence Day holiday. But I have managed to sleep through most of them, regardless. This past week … Continue reading Summer of Celebrations
After a few recent and unexpected deaths in several of my communities, I’ve been reflecting a lot about “the end” lately. I’ve realized that in certain ways, I’m lucky to know that I’m terminally ill. With a medical diagnosis, even of metastatic cancer, you get a suggested chunk of time you’ll still be on this … Continue reading Be Prepared: One for the Metsters
You know what really grinds my gears? When I call the waiter back to the table to take our order when she’s just taken it ten minutes earlier. Or when I tell my husband the same story three times because I have no recollection whether I’ve shared it already or not. And when I start … Continue reading What Was I Doing Again?
It’s October, month of perpetual pink. For those of us with metastatic, stage IV breast cancer, it’s also a daily reminder that barring some dramatic new medical discovery, I won’t be cured in my lifetime. “Terminal” is not a word you hear much during Breast Cancer Awareness Month.As a patient, I try to be optimistic, … Continue reading Pinky and My Brain
The next two weeks should give us more focus into my new treatment plan. My latest brain MRI results are in. The biggest lesion right now, which was 13mm x 10mm in April, has grown to 21mm x 26mm. It’s in the left frontal lobe. The rest of my brain mets are generally stable (some … Continue reading Fortnight
I lost eight hours on Tuesday. I went to our bedroom to rest and after that I only remember bits and pieces until regaining my power of speech and comprehension courtesy of IV steroids. Which is a shame since I just tapered off of the darn things, post-London. Unlike previous seizures, this one snuck up … Continue reading Never a Dull Moment