A list of things YOU SHOULD NOT be hearing at the doctor’s office or hospital, to hopefully improve your 2020 if you are living with MBC or love someone who has it.
Part of a series of daily diary entries about living with MBC. Thursday, October 31, 2019 1:30 am – You know what I’m up for. At least I know I’m hydrated. 6:30 am –Lidocaine patches come off. 7:00 am – Happy Halloween everyone! Time for toast and meds. 8:00 am – My visiting nurse, Laura, calls … Continue reading Dear Diary: Thursday
Part of a series of daily diary entries about living with MBC. Wednesday, October 30, 2019 4:30 am – Yes, I’m up to pee. Again. I manage to get back to sleep afterwards. 6:30 am – I’m up for Lidocaine patch removal. 7:00 am – Time for toast and my mountain of meds. 8:00 am – … Continue reading Dear Diary: Wednesday
This is the second of five daily diary entries about living with MBC. Tuesday, October 29, 2019 6:30 am – Lidocaine patch removal, courtesy of my dear hubby who has already been up a couple of hours working in his home office. I had trouble falling asleep last night, likely due to the steroids starting … Continue reading Dear Diary: Tuesday
We took it easy this July 4th weekend with a quiet night at home. Well, not quiet. We live near the beach, and fireworks pretty much last from Memorial Day through Labor Day, with a surge during the Independence Day holiday. But I have managed to sleep through most of them, regardless. This past week … Continue reading Summer of Celebrations
I admittedly have been avoiding writing another blog post for weeks now. Words fall out of my head before they can get down to my mouth (or my typing fingers). I’ve started playing language-based game apps on my phone so that I can try to keep my vocabulary up to snuff. But for someone who … Continue reading Almost Four Years of Stage IV
I received an email from a teenager last week. She was looking for guidance on how to deal with the loss of her mom this past summer. Like my youngest son, she is in her senior year of high school. A good therapist, counselor, and/or support group is always my first recommendation when we are … Continue reading Grieving
After a few recent and unexpected deaths in several of my communities, I’ve been reflecting a lot about “the end” lately. I’ve realized that in certain ways, I’m lucky to know that I’m terminally ill. With a medical diagnosis, even of metastatic cancer, you get a suggested chunk of time you’ll still be on this … Continue reading Be Prepared: One for the Metsters
You know what really grinds my gears? When I call the waiter back to the table to take our order when she’s just taken it ten minutes earlier. Or when I tell my husband the same story three times because I have no recollection whether I’ve shared it already or not. And when I start … Continue reading What Was I Doing Again?
It’s October, month of perpetual pink. For those of us with metastatic, stage IV breast cancer, it’s also a daily reminder that barring some dramatic new medical discovery, I won’t be cured in my lifetime. “Terminal” is not a word you hear much during Breast Cancer Awareness Month.As a patient, I try to be optimistic, … Continue reading Pinky and My Brain