It’s October, month of perpetual pink. For those of us with metastatic, stage IV breast cancer, it’s also a daily reminder that barring some dramatic new medical discovery, I won’t be cured in my lifetime. “Terminal” is not a word you hear much during Breast Cancer Awareness Month.As a patient, I try to be optimistic, … Continue reading Pinky and My Brain
The next two weeks should give us more focus into my new treatment plan. My latest brain MRI results are in. The biggest lesion right now, which was 13mm x 10mm in April, has grown to 21mm x 26mm. It’s in the left frontal lobe. The rest of my brain mets are generally stable (some … Continue reading Fortnight
I lost eight hours on Tuesday. I went to our bedroom to rest and after that I only remember bits and pieces until regaining my power of speech and comprehension courtesy of IV steroids. Which is a shame since I just tapered off of the darn things, post-London. Unlike previous seizures, this one snuck up … Continue reading Never a Dull Moment
Last Thursday marked my final session of whole brain radiation (WBR). Altogether, I had ten treatments (skipping weekends and holidays). After the first “set up” appointment, where they created a custom molded plastic mask to hold my head in the exact same position each time, the actual radiation process was a breeze. Before each session … Continue reading Bang a Gong
OK, they aren’t really going to nuke my head, but I am getting ten sessions of whole brain radiation starting this afternoon. I’ll back up a bit first, however. Last Sunday I woke up with a headache that nothing would relieve. I tried Advil, then Tylenol, then both together. Even my medical marijuana wouldn’t touch … Continue reading Nuking my Noggin
How do we live in the here and now and not in a constant state of waiting and worrying about MBC? It’s something I’m still working on.
What do all those pink products on the shelves in October actually do for women living with metastatic breast cancer? Not as much as you may think.